Resources for More Information: Pheochromocytoma
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There is a lot of information on the internet about cancer, but it can be hard to know what’s true. These websites have been reviewed by OncoLink and found to be trustworthy and up-to-date.
Pheo Para Alliance
Provides education, one-on-one peer support, and online peer support meetings for patients. Also supports research and clinical trials participation.
National Organization for Rare Disorders
Provides education, support, and some financial assistance (disease-dependent) for individuals with rare diseases. Also provides a caregiver financial assistance program.
https://rarediseases.org/rare-diseases/pheochromocytoma/
Rare Cancer Alliance
Provides support, education, and online forums to connect with other patients with rare cancers.
Neuroendocrine Tumor Research Foundation
Provides information, education, and support for patients with Pheochromocytoma and other NETs
https://netrf.org/old-for-patients/nets-info/tumor-site/adrenal/
Cancer Hope Network
Provides one-on-one peer support to people undergoing treatment for cancer and their families through matching trained volunteers who have recovered from cancer with cancer patients currently going through a similar experience.
Cancer Support Community
An international non-profit dedicated to providing support, education, and resources to people impacted by cancer. Also operates a Helpline, 1-888-793-9355.