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Alcohol Use and Carcinoid Question Can a person with carcinoid drink alcohol? Answer Nevena Damjanov, MD, Medical Oncologist at Penn Medicine responds. Alcohol is not recommended for people who have underlying liver disease, or people who are receiving active treatment...
Are Carcinoid & Neuroendocrine the Same? Question Can carcinoid and neuroendocrine tumor be used interchangeably? Or is one not always the other or something? Answer Katie Fanslau, RN, MSN, Nurse in Nuclear Medicine at Penn Medicine responds. There are a several different types of NETs...
Chemoembolization for Liver Metastases Question How does chemoembolization work for liver disease? What are the requirements to be eligible for this? Answer Ginna Deitrick, CRNP, MSN, Nurse Practitioner for Interventional Radiology at Penn Medicine responds. Chemoembolization (TACE)...
Chromagranin A Blood Test Question When is chromagranin A used? Is there any preparation for this test? Answer Nevena Damjanov, MD, Medical Oncologist at Penn Medicine responds. The chromogranin A blood test is used to monitor neuroendocrine tumors that secrete...
Do All Carcinoid Tumors Cause Symptoms Question If you don't have symptoms like flushing, diarrhea or rapid heartbeat does that mean you likely do not have a carcinoid tumor? Answer Ginna Deitrick, CRNP, MSN, Nurse Practitioner for Interventional Radiology at Penn Medicine responds. ...
Does Chemoembolization Work? Question Is there usually a good response from having a chemoembolization? How long should you wait to get a scan after having it done? Answer Ginna Deitrick, CRNP, MSN, Nurse Practitioner for Interventional Radiology at Penn Medicine responds. ...
Family Genetic Testing in the Presence of MEN Syndrome Question If a family member has a known MEN-1 syndrome, what is the recommended testing and screening for other family members? And what constitutes "family"- first degree, second, etc? Answer Shana Merrill, CGC, Genetic Counselor at Penn...
Finding Expert Care Question Are their specialists that can see patients or take a look at previous scans? My mom was told there isn't any because it was so rare so they continue with CT scans and urine analysis every 3 months. Answer Katie Fanslau, RN, MSN, Nurse...
Interventional Radiology Procedures for Bone Metastases Question Can interventional radiology do anything for bone mets in NETs? Answer Ginna Deitrick, CRNP, MSN, Nurse Practitioner for Interventional Radiology at Penn Medicine responds. IR can sometimes treat bone metastases. It depends on the...
Is Pregnancy Safe for Women with Carcinoid on Somatostatin (Octreotide) Question Can a woman with carcinoid ever become pregnant? Is somatostatin safe during pregnancy? Answer Carolyn Vachani, RN, MSN, AOCN OncoLink Nurse Educator responds. Octreotide is not thought to be harmful to an unborn baby. However, you...
Neuroendocrine Tumors and Niacin Supplements Question What are your recommendations regarding niacin supplements? Should you take them if you have NETs, if so, how much? Answer Nevena Damjanov, MD, Medical Oncologist at Penn Medicine responds. Niacin supplements are used to treat pellagra,...
Online Resources for Neuroendocrine and Carcinoid Information Question What are some online resources for patients? Answer Gloria DiLullo, Nurse Practitioner at Penn Medicine responds. Carcinoid Cancer Foundation: www.carcinoid.org Caring for Carcinoid Foundation: www.caringforcarcinoid.org NET...
Preparation for 5-HIAA Testing Question What are the "rules" to prepare for a 5-HIAA urine test? Foods you can't eat, etc. And do these also apply to the blood test? Answer Ginna Deitrick, CRNP, MSN, Nurse Practitioner for Interventional Radiology at Penn Medicine responds. ...
Radioactivity After Nuclear Medicine Tests Question For procedures in nuclear medicine or Interventional radiology where radioactive dyes or beads are used/injected, does that make a person radioactive? What precautions should be taken and for how long? Answer Katie Fanslau, RN, MSN,...
Safety After Octreotide Scan Question After octreoscan, are there safety precautions because of the radiation used? Answer Katie Fanslau, RN, MSN, Nurse in Nuclear Medicine at Penn Medicine responds. After an Octreotide scan there are no radiation safety precautions to...
Typical Carcinoid Versus Atypical Carcinoid Question What is typical versus atypical carcinoid- what is the difference and are they treated differently? Answer Nevena Damjanov, MD, Medical Oncologist at Penn Medicine responds. Typical carcinoid has a "typical" appearance when the...
Use of Octreoscan in Neuroendocrine Tumor Diagnose and Treatment Question How is octreoscan used in the diagnosis of NETs? Is it also used to monitor response during treatment? Answer Nevena Damjanov, MD, Medical Oncologist at Penn Medicine responds. The OcteroScan is used to evaluate the full extent of spread...
What is an MIBG Scan Question What is MIBG and how is it different than an OctreoScan? Answer Katie Fanslau, RN, MSN, Nurse in Nuclear Medicine at Penn Medicine responds. MIBG scans are also done in nuclear medicine and take 2 days to complete. MIBG is a different...
Which Patients With Neuroendocrine Tumors Should Have Genetic Testing? Question What are the criteria for referral to a genetic counselor for genetic testing in the presence of NETs? Who should be tested? Answer Shana Merrill, CGC, Genetic Counselor at Penn Medicine responds. First, I would like to note that...
Work Up of Suspected Carcinoid Tumor Question What tests are done to work up a suspected carcinoid tumor? Answer Bonnie Bennett, RN, Nurse in Gastroenterology at Penn Medicine responds. Lab tests ordered to look for carcinoid tumor are 24 hr urine 5HIAA and Chromogranin A. It...