Información sobre riesgo, prevención, detección, síntomas, diagnosis, tratamiento y apoyo para el cáncer.
Información sobre el tratamiento del cáncer incluyendo quirúrgica, quimioterapia, radioterapia, estudios clínicos, terapia con protón, medicina complementaria avanzadas.
OncoLink se complace en ofrecer una amplia lista de lista completa de los agentes quimioterapéuticos más comúnmente usados??. Esta guía de referencia incluye información sobre la forma en que cada fármaco se administra, cómo funcionan, y los pacientes los efectos secundarios comunes pueden experimentar.
Maneras que los pacientes de cáncer y las personas que le cuidan puedan enfrentar el cáncer, los efectos secundarios, nutrición, cuestiones en general sobre el apoyo para el cáncer, duelo/decisiones sobre el termino de vida, y experiencias compartidas por sobrevivientes.
Brian E. Beattie
Ultima Vez Modificado: 5 de diciembre del 2002
The following may be used to promote the bone marrow registry program world wide but must not be altered in any way shape or form. My name and email address must accompany my "diary."
My only hope is that this will draw more people into the registry and as a result of this hopefully save the lives of those who need a bone marrow transplant.
Brian E. Beattie
Not to be altered or reproduced in any shape or form without the written permission from the author,
From the date that I was informed that I was a positive match to the date of my surgery I can honestly say that I thought about the bone marrow program and "my" patient several dozen times a day. I wanted to tell everyone that I spoke with, matter of fact if you ask my work colloquies they would probably say that's all I spoke about. My friends and family also heard the same probably more as I was telling them all about the dreaded disease that now is starting to be tamed-Leukemia.
As a user of email and access to the Internet I had access to several newsreader groups from which I obtained a wealth of information. The most valuable information on the "net" came from a monitored news group called BMT-TALK, (Bone Marrow Talk). I sent out a query on the email asking if anyone was a donor or about to become a donor. This was really neat as within hours I had a response from a lady who lived here in the Ottawa-Carleton area and also was about to become a B.M.D. (Bone Marrow Donor). This was amazing as this news posting goes world wide and the chance of locating someone in my own city was neat ! We wrote to each other telling of our experiences as we went through the workup process, separate but together via e-mail.
We arrive at the hospital at 6:30 a.m.(twenty minutes early). We check in at the admissions office and then proceed to the day surgery unit where we wait in the near dark waiting room. After about 15 minutes of nervously flipping through magazines the nurse came out and asked me to come in and get changed into the hospital "greens". I was then assigned my bed, the Nurse who was assigned to prep me was simply wonderful. I was still nervous my wife and I said a short prayer together for me and for the patient who the following day would receive my bone marrow via intravenous (I.V.).
At about 7:45 a.m. the porter showed up to bring me to the operating room. On the way I spot the bone marrow co-ordinator from the Ottawa Red Cross who was himself waiting to get into the "greens" as he was going to be video taping my operation. This video would later be used to assist those who like myself were positive matches and would be going through the donation procedure.
7:50 a.m. and I'm laying on the stretcher outside the operating room waiting for the anesthetist to show. As I strain my neck to sneak a peak through the window of the operating room I see a beehive of activity, my stomach is now a ball of nerves. Finally after a few more minutes (which feels like hours) I am wheeled into the operating room. The room appears smaller than I envisioned it - actual size maybe 12x15 ? What I do notice first is the anesthetic machine and the tables and tables of surgical instruments. Within minutes of being wheeled into the room one of the nurses puts an I.V. line into my left hand - painless. Another is placing heart monitor pads on my chest and left side of my back, while she is doing that another is placing a blood oxygen clip on one of my fingers on my left hand. Talk about being wired for sound ! I now hear a beep-beep-beep from my heart monitor - If I didn't know any better I would say one of the nurses was playing Nintendo... The bone marrow co-ordinator from the Ottawa Red Cross calls out my name from across the room. He started video taping me as soon as I entered the operating room, this video for me is something that I will provide me lifetime of memories and the Red Cross a educational tool.
The nurses and surgeons are all there, I count 11 total. I'm starting to get very drowsy now and it is really hard to find the urge to drift off - but I am determined to give it my best shot (as can be seen in the video). The anesthetist gives me a small drink of very bitter antacid, YUCK ! The next few seconds are a blur but I hear the anesthetist telling me to breathe the oxygen and GO TO SLEEP! What happened next ? Lights out baby... that's it... I was outa there !!
The next thing I remember is I have an extremely sore throat and a mask of some sort on my face. Not knowing where I was I was babbling not understanding what I was saying but still speaking. I remember seeing the bone marrow co-ordinator briefly but then drifted off to sleep. I didn't know it but I was in the recovery room and the operation was over - successful but sore.
Wow, I can hardly wait to view the video.
I was in the operating room from 8:00 to 9:00 a.m., then wheeled into the recovery room from 9:00 to 10:00 a.m., then off to the day care unit where I started out earlier in the morning.
The time now is 10:00 and I am feeling much better, less groggy but a little sore in my lower back. I still have the I.V. in my left hand which is accepting my unit of blood that I had given at the Red Cross a week earlier. It took about three hours to transfuse me and while I am in my bed the bone marrow co-ordinator shows up with a goodie bag.
My wife at this point takes over the video camera as I am presented with some parting gifts from the Red Cross (I feel like a game show contestant). I am given a couple large Red Cross note pads, a coffee mug, a T-shirt and heavy duty sweat shirt with a really neat logo of a heart and two faces looking at each other each in differant colors.
I left the hospital at about 3 p.m. (the same day) and headed home. Once I got home I went to bed and slept until early evening, got up for about 1.5 hrs and then off to bed again where I slept until mid morning the next day. I got up (very slowly) and walked about realizing this was not as bad as I thought it was going to be.
Over the next several days I'd be lying if I said I didn't hurt. It was quite painful - BUT thank goodness for those little yellow pain pills. "Take a trip and never leave the house". Part of the pain was a stabbing pain that felt like an electric shock going down my right leg. This all pretty much disappeared after about the one week time frame - just some stiffness hung around (this I figured just to keep me humble).
I put this diary together and finally after 22 days post operative I feel completely normal. I've posted this on the Internet not for my glory but to encourage those of you who have not yet signed up on the national registry. Contact your local Red Cross for more information.
This news was very hard for me to comprehend. My feelings are that of confusion, anger, followed by sadness and a sincere feeling to reach out to that family (wherever they might be) and help them in any way possible.
My prayer is that God will reach down with His loving arms and wrap this family in a protective layer of love and understanding.
Since this was my one year anniversary I gave the Red Cross permission to release my name and address to my patient as well as place my name back on the unrelated bone marrow registry "active list."
When I was given her name and address it all of a sudden hit me that this to me was no longer an anonymous little girl but someone's precious gem. I would love to meet this little person and her family some day. Maybe they would like to visit Canada's capital and enjoy the goodness that God has given us all. Maybe some day...
An answering machine - RATS ! ! !
So I left a short greeting along with my name and telephone number.
This happened on Saturday morning.
When we left it was near minus 30 - when we arrived in Dallas it was 95 degrees. We spent several special times together over those10 days. We also spent many days by ourselves and put over 1200 miles on the rental car we were using. It was really hot - it turned out that the day we arrived it was the start of a major heat wave. Each day was 98 degrees or hotter (the hottest got up to 103 degrees). The last day we stayed dropped to the normal low of near 32 degrees. What a change! The flight back home was very, very rough and long. A lot of people were sick because of the air turbulence. We flew Dallas to Toronto and Toronto to Ottawa. After arriving home at 11:00 p.m. Ottawa time
I noticed that we were missing one bag - the bag that held all our souvenirs and the kids special things that they picked up while at a rodeo. I called the American airline we flew and they said "oh that's too bad, I then guess it's gone". I then called the Canadian airline and they said they would do their best. Two hours later I got a call saying my bag turned up on another flight from Dallas into Toronto and that they would bring it out that same evening (in a driving snow storm). Talk about great customer service!
I've received several hundreds of emails and personal letters from kind folks from all over the world. my contact with the family has been once in the past two years. I would like to have more but if this were meant to be I again say that don't lift up Brian Beattie but this little girl's family in your daily thoughts and prayers.
I would like to thank those who helped me through this interesting procedure. The people at the Red Cross in Ottawa, Ontario Canada. The nurses, surgeons and staff at the Ottawa General Hospital. My wonderful wife and children and last but not least Jesus Christ to whom I and my family have given our lives to.
Sign up today ! You never know, you just may end helping save someone's life ! Would I do it again - you betcha, in an instant.
Not to be altered in any shape or form without the written permission from the author, Brian E. Beattie
Endocrine System Cancers
Head and Neck Cancers
Urinary Tract Cancers
Bone Marrow Transplants
General Treatment Concerns
Newly Diagnosed Patients
Causes and Prevention
Legal and Financial Information for Patients
Cancer Resource List
Resources for Young Adults